Filed under Communication

Lessons Learned

It wasn’t the first time, but it was the last time I ever want to say the word “hives” when describing my disease to someone. That even goes for conversations where I’ve mentioned every single symptom and say “hives” last. That’s it. No more! (I’m pretty sure everyone with urticarial vasculitis and/or autoimmune urticaria knows … Continue reading

We Are All Liars!

We Are All Liars!

Do you have chronic illness? Yes? You’re a liar. I’m a liar, too. The problem with chronic illness is that it’s just that…chronic–always with us. If you could talk to your old self, the you before your illness, your old self would be freaking out about all the symptoms you’d be describing and extremely sad … Continue reading

Getting the Most out of Doctor Visits

NEW & FREQUENT-FLYER PATIENTS Updated April 24, 2013 Make a list of your most pressing concerns/symptoms List current medications, dosages and frequency List discontinued medications When started When discontinued Why discontinued Side effects? Bring photos (digitally or in print) Bring medical records Organize records with most recent dates first By specialties Labs: Highlight date collected … Continue reading

Autoimmune Urticiaria

From the Indian Journal of Dermatology shared on NIH CHRONIC AUTOIMMUNE URTICARIA: WHERE WE STAND? C L Goh and K T Tan Author information ► Article notes ► Copyright and License information ► Chronic urticaria (CU) is defined as urticaria persisting daily or almost daily for more than six weeks. It causes severe impairment on the quality of life.[1] CU includes physical … Continue reading

Urticaria & Angioedema Algorithm From Goldman’s Cecil Medicine

The Best Algorithm Goldman’s Cecil Medicine: 24th Edition, Volume 2; ISBN 978-1-4377-1604-7; Copyright 2012 Chapter 260, Page 163 Diagnosis algorithm for primary cutaneous vasculitis (KAWAKAMI algorithm). ANCA, antineutrophil cytoplasmic antibody; Ig, immunoglobulin; MPO, myeloperoxidase; PR3, proteinase 3; SLE, systemic lupus erythematosus.

Neutrophilic Urticarial Dermatosis

While researching for something, anything resembling what I have, I came across this abstract from the US National Library of Medicine/National Institute of Health. I find this one quite interesting. In bold blue type are symptoms or presentations consistent with my situation. In red are items to the contrary (I actually did/do have angioedema, facial … Continue reading